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Sjogren's E-Pals
E-Pal Want Ads 2001
An E-pal is an Internet Pen Pal. Living with
Sjögren's
Syndrome can be very difficult, very lonely. Only those who have
Sjögren's
can truly understand how we feel. It’s important to have
someone to "talk" to when no one else understands. An
SjSWorld E-Pal can be that special friend for you.
* To get a
Sjögren's E-Pal you must
first place your
own
E-Pal ad. For more information and to
submit your own E-Pal
Want Ad, click here. Requests are limited to 5
at a time.
~~~~~
E-Pal number December06
Name: Dana
Gender: female
Age: 43
Lives in: California, USA
Years with Sjogren's: 2, but I think I was born with it
About Me: I am 43 years old and very low in weight due to Sjogrens
Syndrome. I have a moderate case of primary sjogrens syndrom.
I would like to communicate with someone about the disease -
what they are going through, foods that are easily swallowed
and learn about their life and coping with this horrible disease.
~~~~~
E-Pal number December04
Name: Ann
Gender: female
Age: 39
Lives in: Massachusetts, USA
Years with Sjogren's: 19
About Me: I am married with 3 children, work as a realtor, and
keep very active. Lately am feeling a lot of pain and other
symptoms. Would love to talk with others, share info and support.
Especially interested in finding a knowledgeable Dr. in my area.
I enjoy decorating, cooking, dancing, socializing and spending
time with family :)
~~~~~
E-Pal
number December01
Name: Denise
Gender: female
Age: 35
Lives in: Oregon, USA
Years with Sjogren's: 3
About Me: Hi, I would like to chat with someone around my age
who has SS. I have the usual dryness everywhere. Lately I have
severe pain in the bottom of my feet, along with all of the
other aches and pains. I recently moved to Oregon, to escape
the big city life. I enjoy my Golden Retriever, walking, outdoors,
and good conversation.
~~~~~
E-Pal number November13
Name: Anastasia
Gender: female
Age: 40
Lives in: Belgium
Years with Sjogren's: 20
About Me: I'd like to find someone in Belgium suffering from
sjogren (or nearby country)
~~~~~
E-Pal number November03
Name: Tammy
Gender: female
Age: 42
Lives in: North Carolina, USA
Years with Sjogren's: <1
About Me: I am married to a wonderful husband. We have three
sons - 20, 16 and 11. I work for a doctors office (lung specialist's)
I have just been diagnosed with Sjogren's, rheumatoid arthritis
and fibromyalgia. I believe I have had it for a while but
my doctor did not discover it until my glands swelled up huge.
My bloodwork is positive. I have so many questions and can
find so little answers. My family and co-workers are wonderful
but I don't think they fully understand the daily pain I go
thru. On the outside I look pretty normal except for a little
drawing up of my hands. Can anybody tell me does it get better,
worse or what? Does it totally disable you or does it ease
up so I can get back to my normal life. My doctor evades my
questions but I need to know. I am very active and am having
a very hard time dealing with all of this.
~~~~~
E-Pal number August06
Name: Jill
Gender: female
Age: 39
Lives in: Victoria BC, Canada
Years with Sjogren's: 3
About Me: I have many interests - bridge, games, reading,
walking, travel, crafts, movies, theatre among others - but
am finding that this illness keeps me from a lot of the activities
I once enjoyed. I would like to compare notes with an E-Pal
about symptoms and am particularly interested in finding out
if there are any Canadian medical centres who are looking
into this illness.
~~~~~
E-Pal number June33
Name: Pam
Gender: female
Age: 53
Lives in: USA
Years with Sjogren's: 15?
About Me: Hello! Ii am looking for a fellow Sjogie that also has
interstitial cystitis. We can compare notes! thanks. Pam.
~~~~~
E-Pal number June27
Name: Janyce
Gender: female
Age: 41
Lives in: Alberta, Canada
Years with Sjogren's: newly diagnosed
About Me: Just diagnosed a few weeks ago! I'm not very familiar
with SS. I'm interested in hearing about all symptoms, treatments,
ability to work, etc. My symptoms are severe joint pain (arthritis
- surgery needed on knees), dry eyes and throat, elevated liver
enzymes, bowel problems (celiac), chronic sinus problems, hay
fever. Dr's first thought I had Lupus, then SS. Want to research
as much as possible, to see if I agree with them. It wouldn't
be the first time I have been misdiagnosed. So any info I can
get, it would be GRATEFULLY appreciated. Thanks.
~~~~~
E-Pal number June21
Name: Ginger
Gender: female
Age: 50
Lives in: South Carolina, USA
Years with Sjogren's: 1
About Me: Am 50 years old, divorced w/two children - boy 12 and
daughter 10. Dx w/Sjogren's last year and also Lupus. Dx w/fibromyalgia
in '97. Lots of arthritis and muscle pain. Looking for a friend,
similar age. I still work fulltime but am running "out of
steam" and am considering a medical/disability retirement.
I love to read, cook and garden when muscles and joints permit.
I am also a Christian and rely on God to get me through each and
every day, one day at a time.
~~~~~
E-Pal number June19
Name: Karen
Gender: female
Age: 59
Lives in: Iowa, USA
Years with Sjogren's: 3+ many
About Me: Occupation: Nurse, Health Information Tech (Jack of
All Trades) and Mom
Hobbies: Anything outdoors! I am a Master Gardener and enjoy landscaping
(hard now), birdwatching, photography, canoeing, camping. Indoors:
quilting, needlecrafts, oilpainting, porcelain dolls, and decorating
my home. After many years of joint pain, sudden bouts of fatigue,
lung problems and now neuro symptoms, I am finally learning about
SjS. I've been in repeating flares every since diagnoses including:
Primary SjS, RA, OA, chronic bronchitis, pleurisy, peripheral
neuropathy, and I have learned important lessons about my own
resiliency and ability to cope that truely amaze me. I would love
to correspond with a couple of pals, especially someone from another
country as well as the USA. Sharing feelings and ideas for coping
with this disease is so important to our understanding and survival.
~~~~~
E-Pal number: June12
Name: Norma
Gender: female
Age: 52
Lives in: Oregon, USA
Years with Sjogren's: 6
About Me: Not working now. Our kids are grown. One in Eugene and
one heading for San Antonio. Taking care of my husband and myself
as well as I can with SS, FM, GERD, nerve and muscle pain. I play
the clavinova keyboard, and am determined to learn more about
this computer. Hobbies include stamping and scrapbooking, but
I'm afraid I haven't done much of that lately. I took a flower
arranging class and am having great fun with that.
~~~~~
E-Pal number: June06
Name: Julie
Gender: female
Age: 30
Lives in: Ohio, USA
Years with Sjogren's: 6
About Me: Hi!! I am Julie. I have had primary Sjogrens and Rehumatoid
Arthritis for 5 years. Each year, I seem to be getting worse.
My most difficult problems right now are severe pain all over,
periodic paralysis and numbness from my head to my toes. I have
a 6 year old son and my hobbies include reading, writing, bears
and baseball. (watching the Indians and tossing the ball with
my son.)
More E-Pals: • 2005 •
2004 •
2003 •
2002 • 2001
• (browse all of them)
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